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September 18, 2018 at 5:04 pm in reply to: 7 months post-op and very frustrated with pain levels and sexual side-effects #1860
Canada3
ParticipantI had a long reconstruction too and am experiencing some frustrations concerning the sexual side effects. Erections came back, although it took time. Morning erections are just a pleasant memory now. A 4 month follow up with scope showed everything was healing nicely and it sounds like it was a success.
The lack of ejaculation power is noticeable and nothing comes out until I sit on a hard surface. Peeing is the same thing after voiding. It is kinda embarrassing and has made clothes washing more essential. My surgeon suggested pushing the skin literally below the testicles (near the incision point in my case). It works some of the time.
Personally, I’m interested if anyone else is experiencing these issues. If so did they go away with time or was intervention with exercise/ retraining as mentioned above? I would also be curious if people are experiencing any discomfort at the incision site rather then repair? I have noticed some days I can feel the site.
Canada3
ParticipantPmvol,
Karl is correct Edmonton and Montreal are main training centres. However, Toronto and Ottawa have some specialists now. I had mine done at the urology clinic at the civic in Ottawa and I was told about a doctor in Toronto as well. The Toronto fellow is really backed up with patients. Basically, this is a relatively new surgery so few in Canada are trained. I almost moved West for this reason, but am happy to have had it completed in Ottawa. Best of luck and feel free to ask any question.
Canada3
ParticipantUpdate: bruising has been slowly disappearing. I learned a little known fact too. I have been reading on forum and it sounds like my case may be unique, but others may experience. The bruising shifted to other parts of my body in the more severely bruised places. According to a doctor who examined me (not my normal one), the body can shift bruising in areas when the damage is too intense to handle to areas not bruised. This allows the area to lessen in bruising and speed up recovery. It doesn’t happen often, but my urethralplasty surgery was a little more complex then what is deemed standard so I guess I’m one case where the body needed to do it. Others that may experience unexplained bruising away from the surgery site should know this may be happening.
Canada3
ParticipantWell that is a relief. I thought mine might have been a little more swollen and bruised then usual based on reactions. It’s nice to know depends upon team.
Also great to know what I’m in store for over the next couple of months. I suspected it would take time despite the optimistic outlooks.
I hope your own recovery continues to progress positively.
Canada3
ParticipantThanks CLayton. Very sagely advice for patience and time.
The scrotum was unusually bruised/swollen from my understanding from the surgical team so I thought I’d still ask. It keeps looking better, but progress has been slow. Time and patience as you suggest.
Fortunately, the foley is the least problematic. Érections are nearly non-existant thanks to a conversation with my doctor prior to surgery. The pain killer type and dosage of the vallium are removing any chance of it. I will get names of drugs /dosages and post for users.
I will look/have someone pick up for the constipation items. I’m still not too worried the first couple of days I didn’t really eat- I have severe allergies the hospital didn’t accommodate despite ample time and warnings.
Can’t thank-you enough Clayton. Best wishes.
Canada3
ParticipantKen,
First thanks so much for this site. Truly awesome I found it before a urthetralplasty surgery and started following. I really didn’t want much info initially I was nervous enough with the complex nature of the stricture. Anyway at home resting after a 4 day hospital stay… I will have catheter for a 3 weeks up from the original projected 2 weeks. Funny it is the least problematic they have given me valium after a previous experience with a foley and I have been sleeping hard along with pain killers. Two questions for you and forum 1) keep in mind things are still tender/fresh from surgery anything that I can do to speed up/lessen testicle pain/scrotium healing. I had my first night of truly amazing pain last night more than I could tolerate to sleep and didn’t get much rest. 2) bowel movments. Still none. I have started eating more solids, but they really went to town on my mouth for material so I was getting food caught everywhere. I have stol softeners, but any foods you might suggest or things to do. I feel like the pressure on the testies and scrotium is directly connected. I am passing loads of gas and feel relief when I do. Many thanks.
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