Forum Replies Created
April 15, 2018 at 8:30 pm in reply to: Catheter put in for bowel cancer op. still there more than 4 months later. Help! #1706
Many thanks for resurrecting this topic. Your post has reminded me that my thanks are long overdue to Clayton for his advice when a post-op urinary catheter was causing me much pain and distress. My experience pales into insignificance compared with yours, and I am so happy for you that you have reached a stage where you can sound so up-beat after such horrendous experiences. Good luck for the future.
As for me, I followed the advice that Clayton gave me on this excellent forum and went to a private consultant urologist. I asked if I could be admitted to a private hospital overnight to do another trial without catheter in the comfort of a private room with help at hand if needed. When he came back to check on me in the morning I had only about 200ml retained in the bladder. He still recommended a suprapubic catheter, but when I expressed my squeamishness and general cowardice he sent me to have my kidney function checked to see if my bladder’s habits were impacting on the kidneys. They haven’t so far, so we have agreed that I will see how it goes but will go back for a suprapubic catheter if I have further problems such as recurrent UTI’s.
Unfortunately, though, I have not recovered my health and nor can I walk unaided or use my R hand following my fall just after my cancer op. but I would have been much worse if I still had to cope with the pain of that catheter!December 13, 2017 at 9:02 pm in reply to: Catheter put in for bowel cancer op. still there more than 4 months later. Help! #1612
As Clayton advised I found a good urologist with female urology as one of his areas of special interest. I made an appointment in a private hospital here and saw him today. I felt very much at ease with him, and after listening attentively to my account of my complete history he recommended that I go into the hospital for an overnight stay for another TWOC test. With the peace and relaxation of an en suite room, with help at hand if necessary, I should have a much better chance of urinating successfully. If this doesn’t happen by next day, he proposes inserting a suprapubic catheter there and then, and discharging me next day.
I was hoping for an overnight stay in hospital like this, and was very pleased that he suggested it. However the idea of an open hole in the abdomen is daunting, and I should be grateful for any advice/voice of experience/comments on this, bearing in mind that I am a devout coward! I am booked in for January 10th, so help!December 3, 2017 at 11:50 pm in reply to: Catheter put in for bowel cancer op. still there more than 4 months later. Help! #1602
Hello Clayton, and many thanks for your helpful reply. I will take your advice and look for a urologist this week. I have been hesitating because my experiences have weakened me considerably, and I know I could not face more surgery.
The catheter is routinely placed here for abdominal surgery such as mine, or for long ops. so that the bladder won’t open on the operating table, and it is usually removed in one or more tests – trials without catheter – before the patient leaves hospital. I have heard that the bladder loses tone when a catheter is in place for too long, and it is unable to empty itself.
A couple of years ago I had a string of painful UTIs and eventually I was unable to pass urine and was rushed off to hospital for emergency catheterisation. It was in for 10 days and then I had a cystoscopy under GA. The surgeon filled my bladder with water before I was woken up, and the pain was severe, but it worked, and the bladder just let go all over the recovery trolley!
The cystoscopy revealed nothing amiss, and there was no stricture according to my consultant. His diagnosis was that I had a large, floppy bladder and retention of urine causing the UTIs, and I was referred on to learn how to self-cath.OUCH!! Fortunately we found that I wasn’t in retention. The UTIs, it seemed, were caused, as I thought, by self-infection via the pads I have had to wear for faecal incontinence for 30 years since I had a hysterectomy. I find this only a relatively minor inconvenience, compared to the sheer hellish pain and the inconvenience of the urinary catheter.
In view of this additional info, do you still think I might be able to get rid of catheter?your experience was dreadful, and I’m o glad it ended well for you.