May 22, 2018 at 12:21 pm #1774barryParticipant
I have a penile stricture ( born with hypospadius and had several surgeries when a youth) and had it dilated in late 2005 with a urethrotomy. I have self dilated since then 1 time a day with good success with a Fr 14 . I only have to go in about 1.5 inches.
In the last month I have noticed my urine stream slowing and the fr 14 won’t go in as far. I now use a fr 12.
Went to urologist last week and he barely got his age 16 cystoscope in the end but could see the narrowing area and he suggests another dilation since my first lasted 12 years with my willingness to self dilate ( which I don’t love but don’t mind). He advises it’s no cure but thinks it’s worth a try to get me more time to avoid other options.
My question was to others that self dilate, especially those with penile strictures, to learn how long your dilation procedures have worked for you.
I am hoping to get a few years out of this one. Anything more would be great.
I do have an appointment with a urethral reconstruction expert in July at Wake Forest ( Dr. Terlecki) that I am going to ask my options regarding urethroplasty or a perineal urethrostomy,
I am 47.July 1, 2018 at 10:06 pm #1812poortonykrauseParticipant
I don’t have experience with self-dilation, but I did get a urethroplasty and can attest to its effectiveness (even though I’ve been experiencing some residual discomfort as you’ve seen in my other post). I just wanted to write to say I would recommend getting a consultation with an experienced surgeon. I had mine done with Dr. Joel German at UC Irvine’s center for urethral reconstruction. He is very dedicated and passionate about what he does. When I wrote him an email for the first time out of the blue, he got back to me right away with an answer and an scheduled appointment ready. His whole team were very professional throughout the whole process as well. I know it’s quite far from wake forest, but with these surgeries, I’ve heard it’s important to get someone with lots of experience. I would at least check out the website to educate yourself about what options are available to you: https://www.centerforreconstructiveurology.org/physicians/gelman/#.WzlQJJNRWEc. I know there are centers at other universities as well. Good luck!July 3, 2018 at 11:01 pm #1819barryParticipant
I saw Dr Terlecki this morning. I liked him and he reviewed some possible options with me. He was nice and confident as well. He says this type of surgery is what he does.
Thanks for the website.July 5, 2018 at 2:59 pm #1820heyitsmeParticipant
My research on Dr. Terlecki was very positive. Good luck.
- You must be logged in to reply to this topic.