Living With A Urinary Catheter › Forums › Urethral Strictures And Their Treatments › My Story so far…
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akai.
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July 7, 2019 at 3:24 am #1976
tofoo
ParticipantHello all,
First off, I was born with hypospadias which was surgically repaired when I was a baby.
I’m now 35 and up to now had very little notable issues with peeing. However, starting Jan 2019, I experienced a uti every month. Saw a urologist and did the contrast dye xray, had a very narrow 1cm stricture in the mid shaft.
In June I had a single stage urethroplasty performed.This left me with a urethral catheter in place. Every night, the erections during sleep were absolutely excruciating. I think I could only manage five hours of painful on and off sleep per night. I feel this caused some damage to the repair. Every time I went to poop, I’d have some bloody urine go around the cath. A couple days post op, I observed some blood coming out of an incision point on the penis.
After a few days, though the swelling and pain went down, small amounts of blood continued to come from this spot periodically. Maybe a week post op, I observed that after pooping the blood that would normally come around the catheter was coming out of the spot on my penis instead. This really worried me…About 12 days post op I went back to the doctors for a check, contrast dye was showing leakage and poor healing. It looked like the dye was spilling into the scrotum from the site of the repair. Doctor placed the urethral catheter back and said to come back in a couple more weeks for it to heal further.
Next day she calls me in to have a suprapubic catheter placed instead as she felt it would better facilitate healing. I go in for this, they injected lidocaine and went at it. They tried to install it but after three attempts, they weren’t able to get the catheter to drain urine. Ended up going through the OR to get the catheter done. The urethral catheter was removed.Doctor is telling me that she thinks it will not heal well, will scar and have more strictures, and is expecting to have to do a BM urethroplasty once I heal enough.
So here I am, waiting to heal up. It seems like, at this point, I have a poorly healing urethra and I fear a extra hole in my penis as well. I feel anxious, disappointed, and a bit hopeless… I went into this with one hole and am coming out of it with two, and the expectation of having to do this all over again…
I figure writing could help, will keep this updated as the saga goes on.
July 7, 2019 at 8:02 am #1977Bro Ken
ParticipantI understand your frustration. My man is going through identical issues after his surgery in April, but he was never examined post op. We are very concerned, and doing everything we can to help the healing process. He has still had some blood leakage, and stabbing and burning pains, but it does seem to be getting better, just very very slowly. Ice gives him relief, and he’s also taking MSM. It helps the healing process so you’ll heal faster and have as little scar tissue as possible, which is exactly what you want. (Cheapest I could find is in bulk off amazon from a company called Dual Health.) He also changed his diet to mostly plant based. Don’t let the doctors get you down, some of them can be very rude and negative. The truth is a lot of people who have this surgery, will need another one in time, but try not to dwell on that. It’s a lot to carry. Take care of yourself. I hope everything works out. Big Hugs!!
July 9, 2019 at 9:47 pm #1978tofoo
ParticipantThanks for the encouragement Bro Ken. I hope your man is feeling better. He hasn’t seen the doctor since April? That doesn’t sound right, is the catheter out?
June 20, 2020 at 10:36 pm #3308tofoo
ParticipantOne year later… I changed doctors to Dr Gelman in Irvine Ca. He has performed stage one urethroplasty back in Nov 2019. Up to that point I had the Supra pubic cath in place for about six months. Adjusting to polite society was difficult but with some extra time each morning and night I managed to hit a routine and returned to work. After the first stage surgery, catheters came out and life became normal… good again. I finished stage two a couple days ago. I am healing up now, catheters back in place. I am hopeful that these will come out by mid July and I’ll be more or less cured! It has been a pretty long journey, with lots of ups and downs. It’s so important to find the right doctor.
July 7, 2020 at 9:22 pm #3366akai
ParticipantHi Tofoo, did the urologist put a supra pubic catheter in one month ahead of urethroplasty?
I am kind of confused that some doctors do and some don’t.Thx.
Akai
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