January 29, 2018 at 8:37 pm #1639wentzelParticipant
it has been a long time coming but today after 2 surgeries (Urethroplasty and a follow up Prostate Laser reduction) I am FINALLY free of my suprapubic catheter! I am fully able to go on my own and I feel like a 12 year old when I go. I am retaining a higher than desired level of urine, so my surgeon had me trained to self Cath, not a fun procedure, but she wanted me to know how and have the supplies just in case. I am take antibiotics for 3 months and if my bladder goes sterile, I should be ok with the larger retention. If I am unable to clear the infection, she thinks I may have to periodically Cath my self to keep the infection at bay. Regardless I am celebrating tonight!
For all those fellow travelers just starting the path, keep your spirits up there is light at the end of the tunnel!
gregJanuary 29, 2018 at 9:31 pm #1640ClaytonParticipant
Greg, that’s really great to hear. I was just wondering how things were going. Thinking back on it now, I can’t believe I had my suprapubic for as long as I did. It’s a nightmare I’m glad is over.
Do you still have lingering soreness in your scrotum and perinium? I still do, but it’s lessening. The suprapubic site is kind of the same way. Sometimes my pants still cause some tenderness, since it was right on the belt line.
Have fun celebrating!
ClaytonJanuary 30, 2018 at 8:38 am #1641wentzelParticipant
Yes I still have a weird achy feeling in my scrotum. It’s not terrible but at 6 months post op I’m wondering if it will ever go away? I’m hoping it does but I can live with it if not. They cut nerves and there are a bunch down there. I also seem to have less feeling in my perineum. Again nothing terrible but certainly different.
My sp site is still open and seeping a little. I have to fly today and that concerned me enough to ask my doctor. I’ve been super busy at work and when I made this appointment I didn’t think about travel after. She said to cover it with a pad and everything should be ok. How long did your weep?
I lasted 9 months with that darn tube. Sleeping tonight and not worrying where it was and not getting it caught is freedom!
Got up early to catch a flight and just got the text it’s delayed. Now I’ll get to spend 3 hours waiting in Atlanta since I’ll miss the connection. Oh well.
Hope all is well with you.January 30, 2018 at 2:11 pm #1642ClaytonParticipant
One of my doctors said that it sometimes takes 9 to 12 months for all of the discomfort to go away, although in some cases it can be as long as 18 months. She assured me that it will eventually subside though.
My suprapubic stopped weeping the same day they took it out, but my surgeon was really surprised that it did. She said it usually takes several days to stop completely.
I remember how weird it was not to be attached to a tube after so many months. For the first week, every time I would get up in the morning I would reach for the night bag.
I have an appointment with my oncologist on February 20th, which he said will be my last since the scans this last year have been completely clear. Now I can run my checkups through my PCP. To say I’m relieved is a massive understatement. Four surgeries and 25 radiation treatments in one year has been enough excitement.
- You must be logged in to reply to this topic.