March 2, 2021 at 10:18 pm #4754craigdwhParticipant
Glad I found this forum, nice to know I’m not alone.
Struggled with a stricture for 20 years, multiple stretches and a urethrotomy over those years. Got to the point of having to self catheter a few times a day to clear the scar tissue. Pain while urinating and intercourse.
It’s amazing how this condition impacted my entire life, anxiety, made travelling horrible as I always had the concern, what if I can’t urinate?
November 2020 rolled along and I came under a UTI, couldn’t clear it, got stretch in January and that’s when the doc said you gotta get this fixed. He offered me the urethroplasty when I was 37 and i said no way. I’m 40 now.
anyways I’m 20 days post op, still need to complete stage 2, whenever that will happen.
I’m extremely depressed, in shock at what has been done to my penis. I almost regret doing it, but know I also really had no choice. The constant dilations, self catheterization was only making it progressively worse.
I’m currently taking Ativan now, the pain at night time due to constant erections has made sleeping non existent. I dread going to bed now. very little discomfort during the day. I think the Ativan has helped with my anxiety but man do i feel hopeless.
Yes I can pee now, so I guess that’s looking up. I still struggle with the “unrelenting urge” to urinate, very similar symptom to a UTI but I have no UTI. The doc said the bladder is a “lazy muscle” and it will take time for it to get back to normal capacity. I drink on average 2 liters of water per day and about 800ml of coffee. Peeing about 10 times a day. I’m thinking i need to cut back on the coffee.
So here we are, penis is well, seen better days lol. It’s hard to stay focused on the big picture.March 10, 2021 at 1:14 am #4755poortonykrauseParticipant
Hey, glad you found this. I had the one-stage buccal mucosa graft about four years ago. It’s still working, but far from perfect–although anything’s an improvement with this disease. Let me know if you have any questions about the surgery and good luck!March 18, 2021 at 11:18 pm #4756craigdwhParticipant
Saw the urologist\surgeon today.
His enthusiasm was encouraging. His exact words “this has to be the best graft I’ve ever done” lmao.
Anyways, he’s extremely pleased with the healing 6 weeks post op. They removed some of the stitches today, thank god, as I believe that is where most of the pain has been derived from.
Sadly, he said it needs a few months to fully heal, so 2nd stage, will be June.
More good news, he said intercourse is fine, (assuming the pain is gone with erection) and biking, running etc I can resume, assuming there is no discomfort. The exercise and the exercise should help with the emotional and mental aspect.
Anyways, bright side, I haven’t had to self dilate since the surgery which was a painful daily process pre surgery.
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