- This topic has 6 replies, 3 voices, and was last updated 4 years, 3 months ago by Anonymous.
March 8, 2018 at 7:20 pm #1681AnonymousInactive
Good afternoon – First I have to echo what others have stated. This site and being able to read the experiences of others has been extremely helpful.
My stricture saga started with a traumatic catheter placement as a child.
Three urethrotomies over the years, and an extremely slow stream finally led me to a urethroplasty. I had a BMG urethroplasty on 3/2 to repair a long stricture within the penis. The surgery took almost 4 full hours.
Unlike others I have read about, the DR did the repair work through an incision in the scrotum rather than the perineum. Anyone else experienced this approach?
So far, I’ve been pretty comfortable but the catheter isn’t slated to come out for another 3 weeks. The worst part has been extremely painful erections during the night while sleeping. I know from this forum that is fairly common. Does anybody have any insights or thoughts on spotting in the underwear around the catheter? I’m not seeing bright red blood in my underwear and my urine is clear when I drain the catheter but i’m seeing pinkish spotting in my underwear. Is this normal? I’m pretty sure it is from what I’ve read but I guess I’m looking for reassurance.March 8, 2018 at 8:50 pm #1682ClaytonParticipant
My stricture was congenital, but it was made worse by a traumatic catheter placement as well.
Where they enter your body for the surgery all depends on where the stricture is. Apparently yours was in the proximal penile if they went through the scrotum. Most of us have perineal incisions because ours was in the bulbar area.
I wouldn’t worry about the discharge. Its just a mixture of blood, urine and other normal bodily fluids caused by the healing process and the irritation from the catheter. It should go away soon.
I had to sleep without a blanket on me for a while because my erections were painful against the covers. Coating the part of the catheter tube that your erection covers with Vaseline can help too.
ClaytonMarch 16, 2018 at 7:46 pm #1686AnonymousInactive
Thanks for your advice about the discharge around the catheter. My urologist confirmed over the phone it was nothing to worry about well.
Today marks 2 weeks since the procedure (10 cm) and i have to admit I’m getting a little discouraged with the slow recovery. I continue to run a low grade fever of around 99 or so and I swear the shaft of my penis is more swollen today than it has been since the surgery. It’s not painful (except in sleep when I assume I trying to get erections) just very puffy and very swollen.
Anybody else have any experience with penis swelling? 2 weeks or more after surgery? My testicles are still sore, swollen slightly, and stiff but they’re a lot more recognizable as normal.March 16, 2018 at 8:33 pm #1687CatheterChrisParticipant
Do not be discouraged with your recovery. I cannot speak from experience as my surgery was done through my perineum but I’m 3 weeks out and I still experience some pain and tenderness in the area. My scrotum was swollen for about a week and a half after my surgery and I still get occasional dull pains there as well. I think one thing we must remind ourselves of is this surgery is a lot for our bodies to absorb. Not too much, but a lot.
You are going to have good days, and bad days. Don’t hesitate to share everything you are feeling with your doc and follow his lead. If he isn’t worried, neither should you.
I too can relate to the painful erections with the catheter in. But the silver lining is that your body is healthy enough to achieve them despite the surgery and all that has happened to your body.
Don’t let your recovery wear on your brain too much, relax and take it day by day.March 16, 2018 at 9:25 pm #1689AnonymousInactive
Thanks for the encouraging words and you’re right about taking it day by day. I’m hoping that the penis swelling starts to subside soon. I’m slated to get the catheter on the 29th so I have almost two full weeks of recovery time ahead of me.
I don’t know if there is an association but the swelling was worse this morning after having a particularly busy day yesterday — 2 short driving trips, going to the drug store etc. We’ll see if things improve from staying more docile.March 16, 2018 at 11:32 pm #1690CatheterChrisParticipant
Busy day definitely is a factor. Every step you take causes the catheter to move up and down your urethra. Considering how sensitive your penis is normally, I’d imagine that sensitivity is heightened during this time. On the second to last day with my the catheter I got a little too confident and ran some errands, I was in so much pain the next morning, I knew it was from how active I was the prior day.
2 more weeks of recovery is nothing compared to the lifetime of relief you are going to feel. You’re almost there man! Enjoy the bedrest, a part of me misses it hah.April 29, 2018 at 10:53 pm #1730AnonymousInactive
Time for an update. I’m hopeful it will help others that might be facing or going through what is, in my estimation, an atypical or more severe urethroplasty experience.
As previously mentioned, my stricture problem started from a catheter injury as a small child and I had three unsuccessful uretrotomies over the years. I’m in my early 50s.
Prior to surgery I was told what I think I already knew – that I had a “very bad urethra” that was heavily scarred. While I somehow never really suffered from recurring UTIs or anything like that, my stream was like trying to pee through a coffee straw, or even worse if I had to go really badly.
On 3/2 I had my urehtroplasty. Unlike most, my urologist decided while I was on the operating table to perform the procedure by making an incision in my scrotum rather than the perineum. He repaired a full 10 centimeter stricture within my penis using the usual graft from skin within my mouth. That’s not a type-o — 10 centimeters.
Exactly 2 weeks post-surgery, you’ll note above that I posted I was concerned with swelling. I called my urologist on the day I made the post about my swelling concerns and was advised to just keep an eye on it because my fever was low grade, sometimes rising to 100 at night but usually just a pesky 99.5 or so. This was on a Friday.
By Sunday, about 48 hours later I remained concerned with the swelling and was also getting some slight drainage from a sore on the side of my penis and a sore on my scrotum just above my incision. I called the urologist on duty and again was told not to worry as long as my fever wasn’t 101 and my catheter was draining fine. That night, I woke up around 4 am in pain from what I figured was due to an erection. I looked under the covers, lifted some gauze and literally puss from infection started spraying out of the side of my penis. So much puss that it soaked the bottom of my t-shirt and soiled the sheets of my bed. By 6am I was in the ER being examined by a freaked out, and I assume grossed out, young ER DR. He just said, “oh yeah, that’s puss, a lot of puss, we need to have urology look at you” and ordered blood work. Luckily, my surgeon was scheduled to perform a surgery that morning so he was able to come by the ER and examine me. I assumed things were really bleak and that I was going to be admitted to the hospital. Instead, my surgeon simply proceeded to start squeezing my scrotum like he was wringing a dish rag. He basically squeezed almost all of puss out of the sore in my scrotum and on the side of my penis. He acted like it wasn’t that big of a deal, prescribed me different antibiotics, and released me to return home.
I felt immediately better and the swelling subsided to a point that my penis was almost recognizable as mine 🙂
Ten days after the ER visit (27 days after the surgery) I returned to my urologist to have my catheter removed and for the VRUG test. I was worried about the appointment because I was continuing to get drainage from the not quite healed sores on the side of my penis and on my scrotum. Turns out I was right to be worried. When the catheter was removed, I was unable to pee at first. When i finally did start to pee, urine literally sprayed out of the sore on my scrotum in addition to a spraying and uneven stream from where urine is supposed to come out. So, I unfortunately, had to have the catheter re-inserted (it was brutal) and was sent home with another 7 days of antibiotics. I can’t say I was entirely surprised by the outcome because my gut was telling me before the appointment that I wasn’t quite ready because I still had some minor swelling and the continued mild drainage from the sore on my scrotum. A follow up appointment was made for 26 days later and I was sent home with a new catheter.
Over the next 26 days I continued to heal and the swelling in my penis continued to gradually subside. I returned to my urologist last Tuesday, 54 days after surgery, to give it another go with the catheter removal and VRUG. This time when the catheter was removed I was able to pee. The stream was a bit splayed and there was a fair bit of blood but I was able to go home without a catheter!
Since Tuesday (this is Sunday) my stream has been great as far as I’m concerned, though it often starts with a split stream before becoming “normal” and at times, starts to drip around the stream before I am completely finished. In any event, it is night and day compared to pre-surgery and every time I go I can tell that my bladder is completely emptying. It is an amazing feeling to pee and feel finished. This may sound a bit over the top, but I’ve been drinking a lot of water, peeing into a measuring jug from the hospital, and timing how long it takes to empty my bladder with the stop watch on my phone. The good news is that I’m emptying my bladder at a rate that is above average for my age group. I also feel great overall.
I am not naive though. This soon after catheter removal it would be shocking if one didn’t have a good stream. I know I certainly had a great stream for some time after my 3 failed urethrotomy procedures. So, my biggest fear for sure is that the urethroplasty will fail and that the stricture will recur as it always has in the past. From what I’ve read, the chances of recurrence increase significantly with longer strictures so the 10CM I’m dealing with make me nervous.
So, that’s my story so far. Just holding my breath that my stream continues like it is now. And, hoping that the split stream when I start, and the dripping around the large nice stream, aren’t indicators of a coming stricture recurrence. I go back to the urologist for a check up on May 10th. He had told me in advance that a 2nd surgery to repair additional stricture more in the bulbar region might be necessary at some point in the future.
I’ll try to continue to post updates. I hope the details of my “severe stricture” experience don’t scare anyone that is facing a urethroplasty. If things continue to work like it is now, or even slow down a good bit, there is no doubt it was the right thing to do. Fingers crossed.
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