Hi Christina,
Sorry for this late reply but I have only just discovered this site and forum. I too had terrible pain and trouble with my first two catheters (12 weeks for the first, and 6 days for the second before it blocked and had to be removed).
I then went back to pads for about six months while the Urology department arranged further tests (I’m in the UK too). To cut to the chase the Cystometrogramme?? test showed I had no sensation or control of my bladder but it didn’t empty until the pressure got far too high and the consultant was worried about kidney damage etc. He recommended a supa-pubic catheter as a permanent solution but because of my medical history there were more than usual risks. Meanwhile I had read up a lot of information on various catheters and found that there was a type called “Hydrogel Coated Latex” which is much more flexible and softer than the “All Silicone” catheters I had previously had. I also learnt about Suby G bladder wash to prevent catheter blocking and cranberry tablets which might help prevent UTIs. I asked the consultant if I could try again with a Foley catheter but using the Hydrogel-Coated Latex type. He agreed and in view of the difficulties previously with chronic catheter pain arranged for the catheter to be fitted in the Urology department breathing Entenox gas to avoid the trauma I had previously endured. – I had had polio as a child and the pain of previous catheter insertions had caused violent spasms in my legs while fitting which made it harder for everyone.
These softer Foley catheters stay in for just as long (13 weeks) so only 4 changes each year but have virtually eliminated the pain I previously experienced. I now honestly forget I have a catheter in place for most of the day.
The Suby G bladder flushes are painless and seem to have prevented further blockages. Now coming up to 12 weeks on my 5th catheter and not worried about having it changed a week on Friday. What a difference from the first one !
If I can help with any more details, just ask.
Mark